65 Roses - milesforcysticfibrosis.org

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Megyn Brantley Holt

Megyn's Story

Hello, my name is Megyn Still. I am an active two year old little girl and I have Cystic Fibrosis. When I was three days old, I underwent surgery for a meconium ileus. My surgery was performed by Charles G. Howell, Jr., MD, and Chief of Pediatric Surgery at Georgia Health Sciences in Augusta, Georgia. I was hospitalized for four weeks before I was able to go home for the first time. I returned to the hospital at the age of four months to have my ileostomy reversed by Dr. Howell. Dr. Howell performed my two surgeries with such care and compassion and my CF Team currently provides me with all the information, medication and training I will need to live a long healthy life.

Since I was a month old, I have taken pancreatic enzymes with every meal and snacks to help me absorb calories and fat from foods that I eat. My mother and father have faithfully provided me with breathing treatments and chest physical therapy twice a day to help clear my airways of mucus. I enjoy all the things a normal toddler does which include reading books, watching Dora the Explorer on TV and playing outside. Believe it or not, exercise and playing outside is actually good for me; it helps strengthen my lungs and keeps me healthy. Our family lean on each other in order to accomplish the various task that are required and still make time for swimming, sandbox time or just running and playing. These include my parents, grandparents, aunts and uncles, friends and the hospital care team. Without them living with CF would not be possible. People will ask my parents, “What is CF” and “Will she always have to take medicine and do chest physical therapy”. Their answer is “Yes” until a cure is found. One resounding thing has been certain from the onset; I am a fighter!

What is cystic fibrosis and how can you help?

Cystic fibrosis is a life shortening, hereditary disease that affects 30,000 people in the United States. There are many stories like Holt’s in our Georgia-Carolina area. The primary attack of the disease compromises the health of the lungs and digestive system. The Cystic Fibrosis Foundation is diligently working to extend the CF patient’s average live span of thirty plus years by creating preventive care medications, researching a cure, and by assisting in the funding of local CF clinics like Georgia Health Sciences University pediatric and adult clinic. GHSU CF clinic staff in Augusta, Georgia consists of a dedicated team of doctors, nurses, and volunteers who help bring compassionate care, education materials, incentive gift cards for pediatric patients, gas cards, and many other services that directly impact our local CF patients through the funding of GHSU Foundation too. As each runner and volunteer participates in Miles for Cystic Fibrosis Team, the funds they raise will equally benefit the Cystic Fibrosis Foundation and the GHSU Foundation.